My heart aches for all of you dealing with this disease. Researchers are fighting a battle on three fronts, trying to find the cause, stopping the disease in those who have it, and repairing the damage cure. All of these take This girl runs on Jesus and Mc Donald’s shirt money and unfortunately a lot of the research dollars are doled out by our government. The more data we have the better the chance we have to get research dollars. This is currently not a reportable disease so the exact prevalence, incidence, mortality rates.
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If someone in this page have experienced seizures? My son was diagnosed 4 years ago when he was 16 years old he started with This girl runs on Jesus and Mc Donald’s shirt for 3 years now. We changed to gilenya, he didn’t have any relapses like for a year but now in less than 6 months he suffered two seizures. His neurologist start a treatment him with keppra, we don’t know yet if he will diagnose with epilepsy too or if this it’s related to his ms or maybe the gilenya it’s not good for him anymore.
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Would there perhaps be any benefit in long term minocycline then? Since there’s a significant change at the six month mark but not at the 24 month mark, just a thought, but demyelination could therefore be This girl runs on Jesus and Mc Donald’s shirt at a non symptomatic level over that longer period and therefore be a target for prolonged immune modulation therapy.